Gynaecological Cancers Data Management Project

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Background to the project

Development of a Minimum Data Set for Gynaecological Cancers

In 2008, the National Centre for Gynaecological Cancers and the National Breas and Ovarian Cancer Centre (NBOCC) worked collaboratively with key professional groups to identify 14 gynaecological-specific clinical data items for cervical, endometrial and ovarian cancer (the three most common gynaecological cancers in Australia). In addition, this project developed a data dictionary to ensure that the data items are collected in a consistent way that will allow data on these cancers to be compared and analysed nationally.

The National Specialist Gynaecological Cancers Minimum Dataset details the minimum information that should be collected – by hospitals, cancer centres, cancer screening programs – about each person’s cancer and the treatment and care they receive. This information enables cancer agencies, health professionals and policy makers to monitor cancer services, assess the quality of care and treatment people receive, and plan services for the future.

These data items compliment the data items that will be collected under the Clinical Cancer Core Dataset and data dictionary, originally developed under aegis of the National Cancer Control Initiative, and are consistent with the data items developed by the International Federation of Gynaecologists and Obstetrics (FIGO).

The National Centre for Gynaecological Cancers, in partnership with NBOCC, will shortly be pilot testing the newly developed National Specialist Gynaecological Cancers Minimum Dataset in a number of states around Australia.

Click here to view Facilitating national consistency in the collection of data items for gynaecological cancers, reproduced with permission from National Breast and Ovarian Cancer Centre.