Building Cancer Support Networks Resources
The Building Cancer Support Networks Grants Program is working to improve the availability of information and support for people affected by cancer. Cancer Australia is working with a range of consumer organisations to build a coordinated and sustainable approach to cancer support. The following list includes some of the organisations that have developed consumer information and support resources with funding assistance from this program.
Cancer research and support projects
Adolescents and young adults
Bowel cancer
Gynaecological cancers
Leukaemia and lymphoma
Lung cancer
Pancreatic cancer
Cancer research and support projects Cancer Council Australia:
Building Effective Cancer Support Groups: Report to the Department of Health Ageing
This publication provides a national review of cancer consumer support networks, identifies the key principles or success factors of effective cancer support groups for people living with cancer, their families and carers, and identifies current gaps in consumer support.
Cancer Council Queensland:
Cancer support groups -a guide to setting up and maintaining a group
This resource kit was developed by the Cancer Council Queensland to increase the capacity and effectiveness of cancer support groups in Queensland.
Adolescents and young adults
Peter MacCallum Cancer Centre:
This project was undertaken by the onTrac@PeterMac Adolescent and Young Adult Cancer Team. The project developed a professionally facilitaed peer support and education based survivorship group for adolescents and young adults living with cancer throughout Victoria.
A facilitated peers support and education based survivorship group for adolescents and young adults living with cancer - Final Report
Peter MacCallum Cancer Centre:
This pilot project was undertaken by the onTrac@PeterMac Adolescent and Young Adult Cancer Team. The project developed and tested innovative strategies for supportive care for adolescents and young adults living with cancer, using information and communication technologies.
Using emerging technologies to improve supportive care for young adults living with cancer - Final Report
Towards Social Connection For Young People with Cancer
Bowel cancer
Cancer Council Victoria:
This project examined the acceptability of peer support for people affected by bowel cancer in metropolitan and regional areas of Victoria, including the barriers to uptake and retention. The project also identified the preferred methods for delivering peer support to this specific group of people.
Models of Peer Support for Bowel Cancer Patients Final Report
Gynaecological cancers
Ovarian Cancer Australia:
Ovarian Cancer Australia Information Sheets developed for women with ovarian cancer, their family and friends. Topics include:
Understanding ovarian cancer
Treatment
Coping with chemotherapy
Support
Staying well
Complementary therapies
Sydney Adventist Hospital:
This project focused on the needs of people affected by gynaecological cancers and lung cancer by refining and evaluating a model of support for both groups.
Lung and gynaecological cancer support groups project - Final Report
Leukaemia and lymphoma
Leukaemia Foundation:
Talk Blood Cancer
This is an online support and information forum for people living with leukaemia, lymphoma, myeloma and related disorders, and their friends and families.
Lung cancer
Peter MacCallum Cancer Centre:
This project assessed the support needs of patients with lung cancer in Victoria and developed a model for delivering peer and other types of support to this group.
Developing a model for peer support for patients with lung cancer – Final Report
What should a support program for patients with lung cancer look like? Differing attitudes of patients and support group facilitators.
Development and piloting of a peer support program for people affected by lung cancer
Pancreatic cancer
Cancer Council NSW:
This project was undertaken to provide models of supportive care and information specifically tailored for people with pancreatic cancer, their families and carers. The project provides support through face-to-face groups, telephone groups, peer support and online activities.
Pancreatic Cancer Support Project
Pancreatic Cancer Support Project Final Report