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All cancers - national and international resources

1. National

2. International

 

1.1 Service delivery frameworks and standards

  • Clinical services capability framework version 2. Brisbane: Queensland Health (2005).

This framework describes acute and sub acute health facility services in two ways – the clinical service area and the capability level of services provided in these areas.
http://www.health.qld.gov.au/publications/corporate/CSCF/default.asp

  • Cancer services pilot accreditation program in New South Wales. Sydney: Cancer Institute NSW, Anns M, Mikus-Wellings M, Thomas R, Lean C, Sinclair S, Bishop J (2010).

Information on the evaluation of a pilot cancer accreditation program on cancer services. It identifies the effectiveness of the program and provides general support for a cancer service accreditation model.
http://www.cancerinstitute.org.au/cancer_inst/publications/pdfs/2010_5_12_cancer-services-pilot-accreditation-program_sept09.pdf

  • National Service Delivery Framework for Adolescents and Young Adults with Cancer. Canberra: Australian Government, Cancer Australia (2008).

National framework for quality local cancer care for adolescents and young adults, providing information on the service delivery needs of adolescents and young adults affected by cancer to optimise outcomes for this group.
http://www.canteen.org.au/docs/AYA_NSDF_19%20Feb_2009.pdf

  • Victoria’s Cancer Action Plan 2008-2011. Melbourne: State Government of Victoria, Department of Human Services (2008).

The plan aims to improve cancer care for patients and increase the survival rate by implementing a new cancer service system for Victoria - Integrated Cancer Services.
http://www.health.vic.gov.au/cancer/docs/vcap/vcactionplan.pdf

  • WA Health Cancer Services Framework. WA Cancer Services Taskforce. Perth: Western Australian Department of Health (2005).

Framework developed to guide action to reduce cancer incidence, increase survival and care, and enhance the quality of life of cancer patients.
http://www.healthnetworks.health.wa.gov.au/cancer/docs/2797%20CancerFramework20800.pdf

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1.2 Clinical practice guidelines

  • Clinical practice guidelines for the psychosocial care of adults with cancer. Camperdown: National Breast Cancer Centre and the National Cancer Control Initiative (2003).

Developed to expand on existing psychosocial clinical practice guidelines, providing information, support and counselling for women with breast cancer.
http://www.nhmrc.gov.au/_files_nhmrc/file/publications/synopses/cp90.pdf

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1.3 Patient satisfaction

  • New South Wales cancer patient satisfaction survey 2008. Sydney: Cancer Institute NSW, Heading G, Mallock N, Sinclair S, Bishop J (2009).

This report compares 2008 and 2007 state cancer patient results to ensure that the 2008 survey is adding depth by revealing patterns and emerging trends.
http://www.cancerinstitute.org.au/cancer_inst/publications/pdfs/2009-7-6_report_nsw-cancer-patient-satisfaction-survey.PDF

  • The National Assessment of Cancer Care Perceptions and Experiences of those Affected by Cancer – Literature Review. Canberra: Cancer Australia, Campbell Research & Consulting (2008).

This literature review provides information on a national assessment of cancer care to determine the perceptions and experiences of people by cancer throughout their cancer journey (CanNET Consumer Survey).
http://www.canceraustralia.gov.au/sites/default/files/user-upload/cannet/publications/consumer_survey_desktop_research.pdf

  • Assessment of Cancer Care Perceptions and Experiences of People Affected by Cancer. Canberra: Cancer Australia, GSB, Campbell Research & Consulting (2010).

Cancer Australia in collaboration with several jurisdictions, commissioned an assessment of cancer care to examine the experiences and perceptions of people directly affected by cancer.
http://www.canceraustralia.gov.au/sites/default/files/user-upload/cannet/consumer_support/Summary_Consumer_Survey_web_final.pdf

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1.4 Reducing risk and finding cancer early

  • National Cancer Prevention Policy 2007-09. NSW: Cancer Council Australia, (2007).

Developed by Cancer Council Australia in order to provide a blueprint for optimal cancer prevention and early detection in Australia.
http://www.cancer.org.au/File/PolicyPublications/NCPP/NCPP_Full_document.pdf

  • Guidelines for preventive activities in general practice (The Red Book) 7th Edition.  South Melbourne: The Royal Australian College of General Practitioners 2009.

A synthesis of evidence-based guidelines from Australia and international sources, which provides recommendations for everyday use in general practice. The Red Book provides a single entry point to common conditions seen in Australian general practice and offers practical advice on what kind of screening and services should be provided to the general population. It identifies high risk segments of the population that require different preventive services. The Red Book also provides a list of screening tests of unproven benefit that are not recommended.
http://www.racgp.org.au/guidelines/redbook

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1.5 Advanced disease and palliative care

  • CareSearch, palliative care knowledge network. Funded by the Australian Government Department of Health and Ageing as part of the National Palliative Care Program.

Provides online resources for consumers, providers and researchers involved in palliative care.
http://www.caresearch.com.au

  • The Palliative Care Evaluation Tool Kit: A compendium of tools to aid in the evaluation of palliative care projects. Centre for Health Service Development, University of Wollongong, Eagar K, Senior K, Fildes D, Quinsey K, Owen A, Yeatman H, Gordon R, Posner N (2004).

Provides information based on lessons from innovative palliative care programs to improve practice effectiveness and reach of palliative care services.
http://ro.uow.edu.au/cgi/viewcontent.cgi?article=1004&context=chsd

  • National Palliative Care Strategy. Canberra: Department of Health and Ageing (2000).

Aims to support the development and provision of best practice palliative care across Australia.
http://www.health.gov.au/internet/main/publishing.nsf/Content/palliativecare-pubs-npcstrat.htm~palliativecare-pubs-npcstrat-3.htm

  • Providing culturally appropriate palliative care to Aboriginal and Torres Strait Islander people: Practice principles. The National Palliative Care Program (2003).

Aims to assist palliative care services and staff to meet the cultural needs of Aboriginal and Torres Strait Islander patients, their families and communities. May also apply to culturally appropriate care for people from other cultures.
http://www.health.gov.au/internet/main/publishing.nsf/Content/palliativecare-pubs-indig-resource.htm

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1.6 Education and training /continuing professional development

  • Linking cancer care: a guide for implementing coordinated cancer care. Melbourne: Victorian Government Department of Human Services (2007).

Provides information on care coordination, a comprehensive approach to achieving continuity of care of patients. It details how Victorian government is committed to developing a ‘whole-of-system’ approach to cancer care coordination.
http://www.health.vic.gov.au/cancer/docs/carecoord/carecoordpolicy.pdf

  • Evaluation Tool - Dissemination Log. Canberra: Cancer Australia, CanNET Cancer Service Networks National Demonstration Program (2009).

Designed to be a record of how information about your project is shared with others.
http://www.canceraustralia.gov.au/sites/default/files/user-upload/cannet/quality_improvement/cannet_dissemination_log.pdf

  • Asking Questions is Important - Question Prompt Lists. Sydney: compiled by the Centre for Medical Psychology and Evidence-based Decision-making (CeMPED), University of Sydney, in collaboration with the Cancer Institute NSW (2008).

This webpage contains information regarding the effectiveness of the question prompt lists (QPL). QPL are an evidence based communication-aid tool that provides patients with a structured list of questions that they may wish to ask their health professionals.
http://www.cancerinstitute.org.au/cancer_inst/profes/questions.html

  • EdCaN (The Australian National Cancer Nursing Education Project), Peter MacCallum Cancer Centre.

EdCaN provides a framework and a set of capabilities outlining the role expectations of nurses working in cancer control. The project’s web-based resource materials, available via the Cancer Learning website, helps nurses acquire these capabilities. The framework and accompanying education resources are part of the broader cancer control efforts needed to reduce the burden of cancer in Australia.
http://www.edcan.org/ and http://www.cancerlearning.gov.au/build/edcan_learning_resources.php

  •  Cancer Learning - strengthening cancer care through education and development (a Cancer Australia initiative).

This site is designed for health professionals working in cancer care.  It aims to: consolidate the enormous variety of evidence-based learning activities, resources and information in cancer care available across Australia and overseas; provide a first port of call for health professionals, organisations and cancer networks who wish to undertake, build or plan professional development programs and activities in cancer care; and enable resources and information to be shared by cancer care providers across Australia. 
http://www.cancerlearning.gov.au/

  • eviQ - Cancer Treatments Online (Cancer Institute NSW).

 eviQ Cancer Treatments Online is a point of care clinical information resource that provides health professionals with current evidence based, peer maintained, best practice cancer treatment protocols and information.  eviQ is designed to support a busy work flow in all Australian clinical and geographical settings, allowing rural, remote and metropolitan health professionals, patients, carers and their families access to the same standard evidence based information at all times. https://www.eviq.org.au/Home.aspx

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1.7 Multidisciplinary teams, care coordination, managed clinical networks

  • Cancer Services Networks Model. Canberra: Cancer Australia, CanNET Cancer Service Networks National Program (2008).

A model of cancer services network elements in order to provide accessible, coordinated and responsive cancer services to all Australians wherever they live.
http://www.canceraustralia.gov.au/sites/default/files/user-upload/cannet/publications/cancer_service_network_elements.pdf

  • Evaluation Tool - Network Assessment Questionnaire. Canberra: Cancer Australia and Siggins Miller, CanNET Cancer Service Networks National Program (2009).

Designed to provide a simple, quick and cost-effective way of assessing the effectiveness of a CanNET network. It is intended to be a development tool, but it is also one component of a broad monitoring and evaluation framework.
http://www.canceraustralia.gov.au/sites/default/files/user-upload/cannet/network_assessment_questionnaire.pdf

  • GP Multidisciplinary Case Conference Medicare items. Canberra: Department of Health and Ageing (2008, updated 2010)

Information about case conferencing items for general practitioners to organise, coordinate or take part in, a meeting or discussion held to ensure that their patient’s multidisciplinary care needs are met through a planned and coordinated approach. Patient’s eligible for a case conference service are those with a chronic or terminal medical condition and complex care needs requiring care or services from at least two other health care providers.
http://www.health.gov.au/internet/main/publishing.nsf/Content/
E0470D26FA4BBA31CA25771B00090107/$File/CaseConfFactSheet.pdf

  • Multidisciplinary care guides. Sydney: NBOCC, 2005-2008.

National Breast and Ovarian Cancer Centre has developed a number of guides to assist health services and health professionals implement a multidisciplinary approach to cancer care based on outcomes from a number of national projects and forums.
http://www.nbocc.org.au/health-professionals/clinical-best-practice/mdc-guides

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1.8 Consumer involvement

  • The development of a consumer participation strategy for difficult-to-access consumers in the NEMICS and Hume RICS geographic areas. Melbourne: Health Issues Centre for CanNET Victoria (2009).

This report contains information regarding a study which examined the experiences of “hard to reach” consumers accessing cancer services from the northern metropolitan regions of Melbourne and the Shepparton region.
http://www.nemics.org.au/Documents/ViewDocument.aspx?club=NEMICS&DocumentID=df107ed2-10f8-481d-afe6-53aea586171c

  • Consumer participation strategy – newsletters and resources. North Eastern Metropolitan Integrated Cancer Services (NEMICS) and CanNET Victoria (2009).

This is a web page linking members of the public to monthly consumer newsletters from CanNET Victoria. It contains information regarding various cancer related health issues and links to CanNET consumer participation strategy in Victoria and associated reports.
http://www.nemics.org.au/Display.aspx?tabid=2731

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1.9 Workforce

  • Medical Labour Force 2007. National health labour force series no.44 Cat. No. HWL 45. Canberra: Australian Institute of Health and Welfare (2009).

Information on the medical practitioner labour force, based primarily on estimates derived from the 2007 Australian Institute of Health and Welfare (AIHW) Medical Labour Force Survey.
http://www.aihw.gov.au/publications/hwl/hwl-45-10723/hwl-45-10723.pdf

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1.10 Evaluation

  • Evaluation Tool - Sustainability, capacity building and generalisability tool. Canberra: Cancer Australia and Siggins Miller, CanNET Cancer Service Networks National Demonstration Program (2009).

An evaluation tool designed to assess factors associated with project sustainability and generalisability, and the extent to which it builds (or plans to build) capacity in the community and in cancer care services and systems.
http://www.canceraustralia.gov.au/sites/default/files/user-upload/cannet/sustainability_capacity_bld_generalisability_tool.pdf

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2.1 Service delivery frameworks and standards

  • National Cancer Peer Review Programme Handbook. NHS Quality in Cancer Service. UK: National Health Service (2008).

The National Cancer Peer Review is a quality program for NHS cancer services. It assesses cancer teams against the quality measures contained within the NHS Manual for Cancer Services This manual has been developed to identify the characteristics of service that are likely to have a significant impact on health related outcomes.
http://www.cquins.nhs.uk/?menu=resources

  • Manual  for cancer services. London: Department of Health, NHS Executive (2004).

The Manual for Cancer Services is an integral part of the NHS Cancer Plan and modernisation of cancer services. It supports quality assurance of cancer services and enables quality improvement and the implementation of NICE Improvement Outcomes Guidance. http://www.dh.gov.uk/en/Healthcare/Cancer/Treatment/DH_101998#_6

  • Cancer Services Collaborative Partnership: Multidisciplinary Team Resource Guide. NHS Modernisation Agency.

This website provides resources and case studies about MDT processes meetings criteria communication protocols and proformas and the rationale for having a coordinator role.
http://www.ebc-indevelopment.co.uk/mdt/challenges.htm

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2.2 Patient, carer and family information

  • Patient Information Pathways. Northern Ireland Cancer Network (NICaN).

This website provides information regarding pathways for those who provide information to people affected by cancer. Each information pathway is an agreed set of written resources, set against an agreed set of stages within the cancer journey. There are tailored versions of this pathway for some cancers including ovarian cancer.
http://www.cancerni.net/infopathways

  • The Cancer Survival Toolbox®, National Coalition for Cancer Survivorship, USA.

The Cancer Survival Toolbox® is a self-learning audio program designed to help people develop skills to address the challenges of their illness.
http://www.canceradvocacy.org/toolbox/

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2.3 Education and training /continuing professional development

  • National Comprehensive Cancer Network

Provides the NCCN Online CME/CE Activities include presentation webcasts, streaming videos, and an audio library of presentations from NCCN Educational Events.
http://www.nccn.org/interactive/default.asp#ovarian

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Updated 16 Feb 2012